Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis.



Armstrong, Rachael E, Frith, Lucy ORCID: 0000-0002-8506-0699, Ulph, Fiona M ORCID: 0000-0003-3590-6542 and Southern, Kevin W
(2020) Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. International journal of neonatal screening, 6 (2).

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Abstract

Newborn bloodspot screening for cystic fibrosis is a valid public health strategy for populations with a high incidence of this inherited condition. There are a wide variety of approaches to screening and in this paper, we propose that a bioethical framework is required to determine the most appropriate screening protocol for a population. This framework depends on the detailed evaluation of the ethical consequences of all screening outcomes and placing these in the context of the genetic profile of the population screened, the geography of the region and the healthcare resources available.

Item Type: Article
Depositing User: Symplectic Admin
Date Deposited: 12 Feb 2021 13:59
Last Modified: 18 Jan 2023 23:00
DOI: 10.3390/ijns6020040
URI: https://livrepository.liverpool.ac.uk/id/eprint/3115551