Armstrong, Rachael E, Frith, Lucy ORCID: 0000-0002-8506-0699, Ulph, Fiona M and Southern, Kevin W ORCID: 0000-0001-6516-9083
(2020)
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis.
International Journal of Neonatal Screening, 6 (2).
40-.
This is the latest version of this item.
Text
Southern et al final.docx - Author Accepted Manuscript Available under License : See the attached licence file. Download (1MB) |
|
Text
Newborn_Screening_for_Cystic_Fibrosis (Book IJNS 2020).pdf - Published version Available under License : See the attached licence file. Download (7MB) |
|
Text
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis.pdf - Published version Download (1MB) | Preview |
Abstract
Newborn bloodspot screening for cystic fibrosis is a valid public health strategy for populations with a high incidence of this inherited condition. There are a wide variety of approaches to screening and in this paper, we propose that a bioethical framework is required to determine the most appropriate screening protocol for a population. This framework depends on the detailed evaluation of the ethical consequences of all screening outcomes and placing these in the context of the genetic profile of the population screened, the geography of the region and the healthcare resources available. View Full-Text
Item Type: | Article |
---|---|
Uncontrolled Keywords: | cystic fibrosis, newborn bloodspot screening, cystic fibrosis screen positive, inconclusive diagnosis (CFSPID), bioethics |
Depositing User: | Symplectic Admin |
Date Deposited: | 18 Feb 2021 11:27 |
Last Modified: | 18 Jan 2023 22:59 |
DOI: | 10.3390/ijns6020040 |
Related URLs: | |
URI: | https://livrepository.liverpool.ac.uk/id/eprint/3115814 |
Available Versions of this Item
-
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. (deposited 15 Jul 2020 10:24)
- Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. (deposited 18 Feb 2021 11:27) [Currently Displayed]