The potential dangers of not understanding COVID-19 public health restrictions in dementia: "It's a groundhog day - every single day she does not understand why she can't go out for a walk"


Giebel, Clarissa ORCID: 0000-0002-0746-0566, Hanna, Kerry ORCID: 0000-0001-7357-7749, Rajagopal, Manoj, Komuravelli, Aravind, Cannon, Jacqueline, Shenton, Justine, Eley, Ruth, Gaughan, Anna, Callaghan, Steve, Tetlow, Hilary et al (show 7 more authors) (2021) The potential dangers of not understanding COVID-19 public health restrictions in dementia: "It's a groundhog day - every single day she does not understand why she can't go out for a walk". BMC PUBLIC HEALTH, 21 (1). 762-.

[img] Text
Adhering to PH restrictions in dementia Paper_BMC.docx - Author Accepted Manuscript
Download (67kB)

Abstract

<h4>Background</h4>Sudden public health restrictions can be difficult to comprehend for people with cognitive deficits. However, these are even more important for them to adhere to due to their increased levels of vulnerability, particularly to COVID-19. With a lack of previous evidence, we explored the understanding and changes in adherence to COVID-19 public health restrictions over time in people living with dementia (PLWD).<h4>Methods</h4>Unpaid carers and PLWD were interviewed over the phone in April 2020, shortly after the nationwide UK lockdown, with a proportion followed up from 24th June to 10th July. Participants were recruited via social care and third sector organisations across the UK, and via social media.<h4>Findings</h4>A total of 70 interviews (50 baseline, 20 follow-up) were completed with unpaid carers and PLWD. Five themes emerged: Confusion and limited comprehension; Frustration and burden; Putting oneself in danger; Adherence to restrictions in wider society; (Un) changed perceptions. Most carers reported limited to no understanding of the public health measures in PLWD, causing distress and frustration for both the carer and the PLWD. Due to the lack of understanding, some PLWD put themselves in dangerous situations without adhering to the restrictions. PLWD with cognitive capacity who participated understood the measures and adhered to these.<h4>Discussion</h4>In light of the new second wave of the pandemic, public health measures need to be simpler for PLWD to avoid unwilful non-adherence. Society also needs to be more adaptive to the needs of people with cognitive disabilities more widely, as blanket rules cause distress to the lives of those affected by dementia.

Item Type: Article
Uncontrolled Keywords: Humans, Dementia, Comprehension, Public Health, Communicable Disease Control, Caregivers, Female, Interviews as Topic, United Kingdom, COVID-19
Divisions: Faculty of Health and Life Sciences
Faculty of Health and Life Sciences > Institute of Population Health
Depositing User: Symplectic Admin
Date Deposited: 08 Apr 2021 07:41
Last Modified: 18 Jan 2023 22:53
DOI: 10.1186/s12889-021-10815-8
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/3118654
Dimensions
Altmetric
CORE (COnnecting REpositories)