Knighting, Katherine, Bray, Lucy, Downing, Julia, Kirkcaldy, Andrew J 
ORCID: 0000-0002-8455-8786, Mitchell, Tracy K ORCID: 0000-0003-0014-8016, O'Brien, Mary R, Pilkington, Melissa and Jack, Barbara A
(2018)
Meeting the needs of young adults with life-limiting conditions: A UK survey of current provision and future challenges for hospices.
JOURNAL OF ADVANCED NURSING, 74 (8).
pp. 1888-1898.
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Knighting_et_al-2018 Meeting the needs of young adults with LLCs A UK survey of current provision and future challenges for hospices-Journal_of_Advanced_Nursing.pdf - Published version Download (727kB) | Preview |
Abstract
<h4>Aim</h4>The aim of this study was to seek views of UK children's and adult hospices on the availability and challenges of providing services for young adults with life-limiting conditions.<h4>Background</h4>Internationally, there are a growing number of young adults with life-limiting conditions and/or complex needs which are degenerative, progressive and diverse and involve complex life-long symptom, medication management as well as palliative care. There are 55,721 young adults, aged 18-40 in England, which continues to increase. The hospice sector is experiencing demands to extend services for this population despite concerns about the appropriateness of adult hospices and their nursing staff to provide care for the complex and unfamiliar conditions of this patient group. Evidence is needed of hospices' views and the main challenges faced providing services for young adults.<h4>Design</h4>Descriptive cross-sectional survey.<h4>Methods</h4>xChildren and adult hospices completed an online survey exploring service provision and their views of respite care for young adults with life-limiting conditions from 18 years old and onward. Data were collected between October 2015 - February 2016.<h4>Findings</h4>Respondents (N = 76 hospices) reported that children's hospices predominantly provided short breaks and end-of-life care; adult hospices provided mainly symptom management, end-of-life care and day services. Main challenges were lack of existing adult respite services; lack of funding and capacity; lack of a skilled workforce in adult hospices; and the need for better integrated service provision.<h4>Conclusion</h4>Examples of good collaborative working were reported. With an increasing population of young adults and pressure on families, it is vital that services work together to find sustainable solutions to the challenges.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | family carers, hospice, life-limiting conditions, nursing, palliative care, parents, transition, young adults |
| Divisions: | Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health |
| Depositing User: | Symplectic Admin |
| Date Deposited: | 11 Mar 2022 08:15 |
| Last Modified: | 01 Feb 2024 18:48 |
| DOI: | 10.1111/jan.13702 |
| Related URLs: | |
| URI: | https://livrepository.liverpool.ac.uk/id/eprint/3150530 |
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