Smith, Eve MD 
ORCID: 0000-0002-8371-7597, Egbivwie, Naomi, Cowan, Katherine, Ramanan, Athimalaipet V and Pain, Clare E ORCID: 0000-0003-4965-3259
(2022)
Research priority setting for paediatric rheumatology in the UK.
LANCET RHEUMATOLOGY, 4 (7).
E517-E524.
Abstract
The evidence base that underlies the management of children and young people with paediatric rheumatic diseases is deficient. In this field, there are many crucial unanswered questions. The UK Paediatric Rheumatology Clinical Studies Group, supported by UK National Institute for Health Research Clinical Research Network: children and Versus Arthritis, elicited ideas for research priorities from paediatric rheumatologists, trainees, allied health-care professionals, nurse specialists, patients, parents of patients, carers, and charities. These ideas were collected through online surveys and face-to-face meetings. A modified Delphi process was used, which included online research priority ranking surveys and a consensus workshop. A longlist of 55 disease-specific research priorities and 37 general research priorities were voted on in the first survey. A list of 11 top general research priorities was produced. The top ten disease-specific research priorities were discussed in depth at a Delphi workshop to determine their final ranking. This Health Policy paper will help to guide clinicians, academics, and funding bodies to prioritise research in paediatric rheumatic diseases, specifically in areas of unmet patient needs.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | Arthritis, Autoimmune Disease, 7 Management of diseases and conditions, 7.1 Individual care needs, Inflammatory and immune system, 3 Good Health and Well Being |
| Divisions: | Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Life Courses and Medical Sciences |
| Depositing User: | Symplectic Admin |
| Date Deposited: | 08 Nov 2022 16:33 |
| Last Modified: | 15 Mar 2024 16:44 |
| DOI: | 10.1016/S2665-9913(22)00106-0 |
| Open Access URL: | https://doi.org/10.1016/S2665-9913(22)00106-0 |
| Related URLs: | |
| URI: | https://livrepository.liverpool.ac.uk/id/eprint/3166071 |
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