Patient and public involvement in a study of multimedia clinical trial information for children, young people and families

Sheridan, Rebecca, Preston, Jennifer ORCID: 0000-0003-4800-234X, Stones, Simon, Ainsworth, Sammy, Horton Taylor, Danielle, Challinor, Robyn, Ainsworth, Sophie, Martin-Kerry, Jacqueline, Brady, Louca-Mai and Knapp, Peter (2020) Patient and public involvement in a study of multimedia clinical trial information for children, young people and families. Research for All, 4 (1). pp. 47-65.

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Official URL: http://dx.doi.org/10.18546/rfa.04.1.05

Abstract

<jats:p>There is increasing recognition of the need to involve the public in health research, but accounts of how best to achieve this are scarce. This article describes public involvement in the TRials Engagement in Children and Adolescents (TRECA) study, which is developing and evaluating multimedia information resources to inform children, young people and their familes about clinical trials. A dedicated group of young people with long-term health conditions and their parents met regularly throughout the study; further involvement was sought when specific input was required. Review of formal impact records and informal discussions highlighted how public involvement can positively influence research practice and the people involved. By detailing the methods of involvement used, this work also provides guidance for successfully implementing public involvement in research, and highlights challenges that should be considered in future research projects.</jats:p>

Item Type:	Article
Uncontrolled Keywords:	Clinical Trials and Supportive Activities, Pediatric, Clinical Research, 7.1 Individual care needs, 7 Management of diseases and conditions, Generic health relevance
Divisions:	Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Life Courses and Medical Sciences
Depositing User:	Symplectic Admin
Date Deposited:	26 Jan 2023 11:12
Last Modified:	15 Mar 2024 07:15
DOI:	10.18546/rfa.04.1.05
Related URLs:	Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3167911