Maćkowiak, Maria, Senczyszyn, Adrianna, Lion, Katarzyna, Trypka, Elżbieta, Małecka, Monika, Ciułkowicz, Marta, Mazurek, Justyna, Świderska, Roksana, Giebel, Clarissa 
ORCID: 0000-0002-0746-0566, Gabbay, Mark ORCID: 0000-0002-0126-8485 et al (show 2 more authors)
(2021)
The impact of COVID-19 on the lives of community- dwelling people with dementia and informal carers in the context of using the social and medical services – a qualitative study.
[Preprint]
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Abstract
<h4>Background: </h4> Older people with dementia are particularly at risk of COVID-19, whilst still little is known about the indirect impact of the Pandemic on the lives of those living with and caring for someone with dementia. The aim of this study was to investigate the impact of the Pandemic on the lives of people with dementia and their informal carers in the context of using social and medical services in Poland. <h4>Methods:</h4> A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed. Interviews were collected between June and August 2020 via phone after the first wave of COVID-19 in Poland. Data were analysed using NVivo software by four team members. <h4>Results:</h4> Three overarching themes emerged: (1) Care re-organization; (2) Psychological responses; (3) Emerging needs. The factor underlying all these elements were a reliance on other people. Regardless of the type of support (informal or formal), a sense of presence of others and maintaining mutual contacts displayed as crucial elements influencing the well-being of people with dementia and informal carers. <h4>Conclusions:</h4> Social support and engagement are vital to the ongoing health and wellbeing of people living with dementia and their informal carers. Services need sustaining to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their need.
| Item Type: | Preprint |
|---|---|
| Uncontrolled Keywords: | Dementia, Brain Disorders, Acquired Cognitive Impairment, Neurodegenerative, 7 Management of diseases and conditions, 7.1 Individual care needs, Neurological, 3 Good Health and Well Being |
| Divisions: | Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health |
| Depositing User: | Symplectic Admin |
| Date Deposited: | 31 Jan 2023 16:36 |
| Last Modified: | 12 Apr 2024 04:10 |
| DOI: | 10.21203/rs.3.rs-415217/v1 |
| Open Access URL: | https://www.researchsquare.com/article/rs-415217/v... |
| Related URLs: | |
| URI: | https://livrepository.liverpool.ac.uk/id/eprint/3168037 |
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