Updating international consensus on best practice in care of the dying: A Delphi study



McGlinchey, Tamsin, Early, Rebecca, Mason, Stephen ORCID: 0000-0002-4020-6869, Johan-Furst, Carl, van Zuylen, Lia, Wilkinson, Susie and Ellershaw, John ORCID: 0000-0001-9789-3180
(2023) Updating international consensus on best practice in care of the dying: A Delphi study. PALLIATIVE MEDICINE, 37 (3). pp. 329-342.

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Abstract

<h4>Background</h4>Good care of the dying has been defined as being able to die in the place of your choice, free from pain, cared for with dignity and supported by the best possible care. This definition underpinned the development of the '10/40 Model' of care for the dying, in 2013. The model includes 10 'Key Principles' that underpin 40 'Core Outcomes' of care. It was necessary to update consensus on the 10/40 Model to ensure that it remains clinically relevant and applicable for practice.<h4>Aim</h4>Update international consensus on the content of the 10/40 Model.<h4>Design</h4>Delphi study utilising questionnaire completion; each round informed the need for, and content of the next. Free text comments were also sought. Three rounds of Delphi were undertaken.<h4>Setting/participants</h4>A total of 160 participants took part in round 1, representing 31 countries; 103 in round 2 and 57 in round 3. Participants included doctors, nurses, researchers and allied health professionals, with over 80% working predominantly in palliative care (general/specialist not specified).<h4>Results</h4>Minor amendments were made to seven items related to: recognition of the dying phase, ongoing assessment of the patient's condition, communication with patients about the plan of care and care in the immediate time after the death of a patient. Results supported the addition of a sub core outcome for care provided after death.<h4>Conclusion</h4>The updated 10/40 Model will guide the delivery of high-quality care for dying patients regardless of the location of care. Further work should focus on increasing lay participation and participation from low income and culturally diverse countries.

Item Type: Article
Uncontrolled Keywords: Palliative care, terminal care, quality of care, consensus development, Delphi method
Divisions: Faculty of Health and Life Sciences
Faculty of Health and Life Sciences > Institute of Life Courses and Medical Sciences
Faculty of Health and Life Sciences > Institute of Systems, Molecular and Integrative Biology
Depositing User: Symplectic Admin
Date Deposited: 22 Feb 2023 15:50
Last Modified: 06 Apr 2023 04:49
DOI: 10.1177/02692163231152523
Open Access URL: https://journals.sagepub.com/doi/10.1177/026921632...
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URI: https://livrepository.liverpool.ac.uk/id/eprint/3168541