Factors which influence ethnic minority women's participation in maternity research: A systematic review of quantitative and qualitative studies.

Lovell, Holly, Silverio, Sergio A ORCID: 0000-0001-7177-3471, Story, Lisa, Skelton, Emily and Matthew, Jacqueline (2023) Factors which influence ethnic minority women's participation in maternity research: A systematic review of quantitative and qualitative studies. PloS one, 18 (2). e0282088-e0282088.

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Official URL: http://dx.doi.org/10.1371/journal.pone.0282088

Abstract

<h4>Background</h4>Women from Black, Asian and mixed ethnicity backgrounds in the UK experience higher rates of maternal and neonatal mortality and morbidity, and report poorer experiences of maternity care. Research is required to understand how to reduce these disparities, however, it is acknowledged these groups of women are under-represented in clinical research.<h4>Aim</h4>To investigate factors which influence participation in maternity research for women from an ethnic minority background.<h4>Methods</h4>A systematic review was conducted to examine influencing factors for research participation. MEDLINE/CINHAL/PsycInfo/EMBASE databases were systematically searched in March 2021 and updated in March 2022. Papers were eligible if they explored maternal research participation and identified a woman's ethnicity in the results. No restrictions were placed on methodology. A convergent integrated approach was used to synthesise findings.<h4>Findings</h4>A total of 14 papers met the inclusion criteria. Results were divided into eight overarching themes. A personalised approach to recruitment and incorporating culturally sensitive communication and considerations enhanced research participation. Distrust around sharing data, a perception of risk to research participation, and research lacking in personal relevance adversely affected the decision to participate. Large variation existed in the quality of the studies reviewed.<h4>Conclusions</h4>Consideration of a woman's culture and background in the design and the delivery of a maternity research study may facilitate participation, particularly when sampling from a specific population. Further research, informed by women from ethnic minority backgrounds is warranted to develop women-centred recommendations for conducting inclusive maternity research. Prospero registration: www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42021261686.

Item Type:	Article
Uncontrolled Keywords:	Humans, Obstetrics, Pregnancy, Qualitative Research, Minority Groups, Infant, Newborn, Maternal Health Services, Female, Ethnic and Racial Minorities, Ethnicity
Divisions:	Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health
Depositing User:	Symplectic Admin
Date Deposited:	26 Apr 2023 10:10
Last Modified:	02 Jun 2023 06:20
DOI:	10.1371/journal.pone.0282088
Open Access URL:	https://doi.org/10.1371/journal.pone.0282088
Related URLs:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3169975