Ghosts in the machinery: Living with and beyond radiotherapy treatment for gynaecological cancer



Stewart, Hilary, Ashmore, Lisa, Kragh-Furbo, Mette, Singleton, Vicky and Hutton, Daniel
(2022) Ghosts in the machinery: Living with and beyond radiotherapy treatment for gynaecological cancer. HEALTH, 28 (1). pp. 90-107.

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Abstract

This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring <i>legacies</i> of cancer and 'neglected matters' in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are 'out of the other side of cancer' once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These 'ghosts' manifest in chronic states of unsettledness that are temporarily relieved by individualised 'fixes', such as mobilisation of 'mind over matter' discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to 'neglected matters' of post-treatment trajectories differently.

Item Type: Article
Uncontrolled Keywords: cancer, haunting, radiotherapy, treatment effects
Divisions: Faculty of Health and Life Sciences
Faculty of Health and Life Sciences > Institute of Population Health
Depositing User: Symplectic Admin
Date Deposited: 29 Sep 2023 08:13
Last Modified: 30 Dec 2023 10:06
DOI: 10.1177/13634593221114749
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/3173170