Opening up ideas: an advent calendar for patient and public engagement in clinical trials research.

Harman, Nicola L ORCID: 0000-0001-6958-6466, McGiveron, Kerrie, Tudur Smith, Catrin ORCID: 0000-0003-3051-1445, Williamson, Paula R ORCID: 0000-0001-9802-6636 and Barrington, Heather (2023) Opening up ideas: an advent calendar for patient and public engagement in clinical trials research. Research involvement and engagement, 9 (1). 118-.

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Official URL: http://dx.doi.org/10.1186/s40900-023-00530-6

Abstract

The involvement of patients and the public in research is now an expectation in research with funders requesting a clear plan of involvement and engagement. In the United Kingdom involvement typically focuses on research prioritisation, design and delivery, in contrast activities that share the results of research or research methods more generally are considered to be engagement. Clinical trials tend to concentrate on involvement activities with less emphasis on engagement. To promote engagement activities in the context of clinical trials we asked people attending the 2022 International Clinical Trials Methodology Conference to share ideas on how we can best engage with patients and the public. Responses were reviewed and 22 themes identified. One suggestion was to create an advent calendar and so these 22 themes plus two from the authors were used as a daily tweet from the 1st to the 24th December 2022. Here we share these ideas and draw comparisons between engagement activities in research and traditions of the Christmas period. The ideas shared are not intended as a definitive list but instead a novel way to start discussions between experts by experience, researchers, health professionals and communities to facilitate co-production of meaningful engagement strategies.

Item Type:	Article
Uncontrolled Keywords:	Clinical trials, Clinical trials methodology, Patient and public engagement, Patient and public involvement
Divisions:	Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health
Depositing User:	Symplectic Admin
Date Deposited:	20 Dec 2023 16:16
Last Modified:	22 Dec 2023 08:02
DOI:	10.1186/s40900-023-00530-6
Open Access URL:	https://doi.org/10.1186/s40900-023-00530-6
Related URLs:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3177576