Addressing ethnic disparities in neurological research in the United Kingdom: an example from the prospective multicentre COVID-19 Clinical Neuroscience Study.


van Wamelen, Daniel J, Rota, Silvia, Hartmann, Monika, Martin, Naomi H, Alam, Ali M, Thomas, Rhys H, Dodd, Katherine C, Jenkins, Thomas, Smith, Craig J, Zandi, Michael S et al (show 11 more authors) (2024) Addressing ethnic disparities in neurological research in the United Kingdom: an example from the prospective multicentre COVID-19 Clinical Neuroscience Study. Clinical medicine (London, England), 24 (3). p. 100209.

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Abstract

<h4>Background</h4>Minority ethnic groups have often been underrepresented in research, posing a problem in relation to external validity and extrapolation of findings. Here, we aimed to assess recruitment and retainment strategies in a large observational study assessing neurological complications following SARS-CoV-2 infection.<h4>Methods</h4>Participants were recruited following confirmed infection with SARS-CoV-2 and hospitalisation. Self-reported ethnicity was recorded alongside other demographic data to identify potential barriers to recruitment.<h4>Results</h4>807 participants were recruited to COVID-CNS, and ethnicity data were available for 93.2%. We identified a proportionate representation of self-reported ethnicity categories, and distribution of broad ethnicity categories mirrored individual centres' catchment areas. White ethnicity within individual centres ranged between 44.5% and 89.1%, with highest percentage of participants with non-white ethnicity in London-based centres. Examples are provided how to reach potentially underrepresented minority ethnic groups.<h4>Conclusions</h4>Recruitment barriers in relation to potentially underrepresented ethnic groups may be overcome with strategies identified here.

Item Type: Article
Uncontrolled Keywords: COVID-CNS consortium
Divisions: Faculty of Health and Life Sciences
Faculty of Health and Life Sciences > Institute of Infection, Veterinary and Ecological Sciences
Depositing User: Symplectic Admin
Date Deposited: 30 Apr 2024 09:38
Last Modified: 10 May 2024 18:26
DOI: 10.1016/j.clinme.2024.100209
Open Access URL: https://www.sciencedirect.com/science/article/pii/...
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URI: https://livrepository.liverpool.ac.uk/id/eprint/3180674
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