The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale

Buck, Deborah, Smith, Monica, Appleton, Richard, Baker, Gus A and Jacoby, Ann (2007) The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale. EPILEPSY & BEHAVIOR, 10 (1). pp. 38-43.

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Abstract

Few suitable instruments exist for use with people, especially children, with both epilepsy and learning disabilities. One such measure is the Epilepsy and Learning Disabilities Quality of Life scale (ELDQOL), which has recently undergone revision following feedback from relevant users. This article reports on the final psychometric testing phase of this scale. ELDQOL consists of 70 items covering seizure severity, seizure-related injuries, antiepileptic drug side effects, behavior, mood, physical, cognitive, and social functioning, parental concern, communication, overall quality of life, and overall health. Revalidation involved a qualitative phase, to ascertain users' opinions on the wording, coverage, and layout of the questionnaire, and a quantitative phase, to examine internal consistency, test-retest reliability, and validity. There is very good evidence of the reliability and validity of the final version of ELDQOL, making it a promising instrument for assessing quality of life in children/young adults with epilepsy and learning disabilities.

Item Type:	Article
Additional Information:	## TULIP Type: Articles/Papers (Journal) ##
Uncontrolled Keywords:	epilepsy, children, learning disabilities, quality of life, carer, assessment
Subjects:	?? RA ??
Divisions:	Faculty of Health and Life Sciences > Institute of Population Health
Depositing User:	Symplectic Admin
Date Deposited:	10 Mar 2009 09:53
Last Modified:	16 Dec 2022 04:33
DOI:	10.1016/j.yebeh.2006.10.010
Related URLs:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/1125