Hickey, Graeme L ORCID: 0000-0002-4989-0054, Grant, Stuart W
ORCID: 0000-0003-3468-591X, Cosgriff, Rebecca, Dimarakis, Ioannis
ORCID: 0000-0002-3795-3644, Pagano, Domenico, Kappetein, Arie P and Bridgewater, Ben
(2013)
Clinical registries: governance, management, analysis and applications.
European journal of cardio-thoracic surgery : official journal of the European Association for Cardio-thoracic Surgery, 44 (4).
pp. 605-614.
ISSN 1010-7940, 1873-734X
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Abstract
Clinical registries will have an increasingly important role to play in health-care, with a number already established in cardiac surgery. This review covers the fundamentals of establishing and managing clinical registries, including legal and ethical frameworks along with intellectual property attribution. Also discussed are important issues relating to the processing of data, data extraction and conducting analyses using registry data.
Item Type: | Article |
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Uncontrolled Keywords: | Humans, Registries, Biomedical Research, Intellectual Property, Ethics, Professional, Management Information Systems |
Depositing User: | Symplectic Admin |
Date Deposited: | 19 May 2015 14:09 |
Last Modified: | 07 Dec 2024 14:21 |
DOI: | 10.1093/ejcts/ezt018 |
Related URLs: | |
URI: | https://livrepository.liverpool.ac.uk/id/eprint/2011519 |