Ormerod, Clare Rachel
(2019)
The IBD Control Questionnaire : the development and psychometric validation of a questionnaire for measuring inflammatory bowel disease control from the patient's perspective
Doctor of Medicine thesis, University of Liverpool.
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Abstract
Introduction: The importance of patient reported outcome measures (PROMs) is increasingly recognised. However, their use in inflammatory bowel disease (IBD) care is not widespread. The aim of this research was to develop and validate a PROM for use in day to day clinical practice. Methods: (1) Questionnaire development: Questionnaire specification was determined by a multidisciplinary steering group. Literature review of existing PROMs was undertaken. Focus groups meetings and one-to-one patient interviews were performed. Participants were asked to discuss the concept of 'control' of their IBD. Thematic analysis of field notes and transcribed quotes was performed. A draft questionnaire was designed and a pilot study of 30 patients was undertaken. (2) Prospective validation of the IBD Control Questionnaire: Patients completed the IBD-Control Questionnaire and the following established measures: a quality of life questionnaire (UK-IBD-Q), EuroQol (EQ-5D) and the Hospital Anxiety and Depression Score. Disease activity indices were recorded (Harvey-Bradshaw Index or Simple Clinical Colitis Activity Index). A global physician assessment (blinded to questionnaire score) was also performed. Data were recorded at ... (continues)
| Item Type: | Thesis (Doctor of Medicine) |
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| Divisions: | Faculty of Health & Life Sciences > Inst. Life Courses & Medical Sciences > School of Medicine |
| Depositing User: | Symplectic Admin |
| Date Deposited: | 15 Jul 2019 10:34 |
| Last Modified: | 13 Apr 2025 07:04 |
| DOI: | 10.17638/03046278 |
| Supervisors: |
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| URI: | https://livrepository.liverpool.ac.uk/id/eprint/3046278 |
| Disclaimer: | The University of Liverpool is not responsible for content contained on other websites from links within repository metadata. Please contact us if you notice anything that appears incorrect or inappropriate. |
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