Measuring functional disability in children with developmental disorders in low-resource settings: validation of Developmental Disorders-Children Disability Assessment Schedule (DD-CDAS) in rural Pakistan



Hamdani, Syed Usman, Huma, Zill-e ORCID: 0000-0002-2681-1771, Wissow, Lawrence, Rahman, Atif ORCID: 0000-0002-2066-4467 and Gladstone, Melissa ORCID: 0000-0002-2579-9301
(2020) Measuring functional disability in children with developmental disorders in low-resource settings: validation of Developmental Disorders-Children Disability Assessment Schedule (DD-CDAS) in rural Pakistan. Global Mental Health, 7.

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Abstract

Background Developmental disorders (DDs) in children are a priority condition and guidelines have been developed for their management within low-resource community settings. However, a key obstacle is lack of open access, reliable and valid tools that lay health workers can use to evaluate the impact of such programmes on child outcomes. We adapted and validated the World Health Organization's Disability Assessment Schedule for children (WHODAS-Child), a lay health worker-administered functioning-related tool, for children with DDs in Pakistan. Methods Lay health workers administered a version of the WHODAS-Child to parents of children with DDs (N = 400) and without DDs (N = 400), aged 2–12 years, after it was adapted using qualitative study. Factor analysis, validity, reliability and sensitivity to change analyses were conducted to evaluate the psychometric properties of the adapted outcome measure. Results Among 800 children, 58% of children were male [mean (s.d.) age 6.68 (s.d. = 2.89)]. Confirmatory Factor Analysis showed a robust factor structure [χ2/df 2.86, RMSEA 0.068 (90% CI 0.064–0.073); Tucker–Lewis Index (TLI) 0.92; Comparative Fit Index (CFI) 0.93; Incremental Fit Index (IFI) 0.93]. The tool demonstrated high internal consistency (α 0.82–0.94), test–retest [Intra-class Correlation Coefficient (ICC) 0.71–0.98] and inter-data collector (ICC 0.97–0.99) reliabilities; good criterion (r −0.71), convergent (r −0.35 to 0.71) and discriminative [M (s.d.) 52.00 (s.d. = 21.97) v. 2.14 (s.d. = 4.00); 95% CI −52.05 to −47.67] validities; and adequate sensitivity to change over time (ES 0.19–0.23). Conclusions The lay health worker administrated version of adapted WHODAS-Child is a reliable, valid and sensitive-to-change measure of functional disability in children aged 2–12 years with DDs in rural community settings of Pakistan.

Item Type: Article
Uncontrolled Keywords: Autism, childhood disability, Developmental Disabilities Children's Global Assessment Scale (DD-CGAS), developmental disorders, disabilities, Developmental Disorders-Children Disability Assessment Schedule (DD-CDAS), functional disability, intellectual disability, International Classification of Functioning-Children and Youth (ICF-CY), low-resource settings, non-specialists, WHO Disability Assessment Schedule (WHODAS 2.0)
Depositing User: Symplectic Admin
Date Deposited: 30 Jul 2020 13:18
Last Modified: 15 May 2021 11:20
DOI: 10.1017/gmh.2020.10
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/3095249