Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis



Armstrong, Rachael E, Frith, Lucy ORCID: 0000-0002-8506-0699, Ulph, Fiona M and Southern, Kevin W ORCID: 0000-0001-6516-9083
(2020) Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis. International Journal of Neonatal Screening, 6 (2).

This is the latest version of this item.

[img] Text
Southern et al final.docx - Accepted Version
Available under License : See the attached licence file.

Download (1MB)
[img] Text
Newborn_Screening_for_Cystic_Fibrosis (Book IJNS 2020).pdf - OA Published Version
Available under License : See the attached licence file.

Download (7MB)
[img] Text
Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis.pdf - OA Published Version

Download (1MB) | Preview

Abstract

Newborn bloodspot screening for cystic fibrosis is a valid public health strategy for populations with a high incidence of this inherited condition. There are a wide variety of approaches to screening and in this paper, we propose that a bioethical framework is required to determine the most appropriate screening protocol for a population. This framework depends on the detailed evaluation of the ethical consequences of all screening outcomes and placing these in the context of the genetic profile of the population screened, the geography of the region and the healthcare resources available. View Full-Text

Item Type: Article
Uncontrolled Keywords: cystic fibrosis, newborn bloodspot screening, cystic fibrosis screen positive, inconclusive diagnosis (CFSPID), bioethics
Depositing User: Symplectic Admin
Date Deposited: 18 Feb 2021 11:27
Last Modified: 05 Oct 2021 08:19
DOI: 10.3390/ijns6020040
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/3115814

Available Versions of this Item