Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN)

Starmer, Heather, Patterson, Joanne ORCID: 0000-0001-8898-8292, Young, Bridget ORCID: 0000-0001-6041-9901, Fleming, Jason ORCID: 0000-0001-7963-1224 and Cherry, Mary (2024) Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN) Head and Neck: journal for the sciences and specialities of the head and neck, 46 (5). pp. 1103-1111. ISSN 1043-3074, 1097-0347

Text CALI-HaN manuscript rev dec19 clean.docx - Author Accepted Manuscript Download (64kB)

Abstract

Purpose: To develop a head and neck lymphoedema (HNL) specific quality of life (QoL) instrument to assess physical, functional, and social/emotional impacts of HNL. Methods: Instrument candidate items were reviewed by patients with HNL and clinicians and rated for importance, clarity, and invasiveness. The Content Validity Ratio was applied for item reduction. Three-step cognitive interviews were conducted with HNL patients to validate the items, survey format, and instructions. Results: Initially, 130 candidate questions were developed. Following item reduction, 52 items progressed to three-step cognitive interviews. Following cognitive interviews, the Comprehensive Assessment of Lymphoedema Impact in Head and Neck (CALI-HaN) included 33 items; 1 global, 10 physical, 7 functional, and 15 emotional. Conclusions: Physical, functional, and socioemotional effects need to be considered when measuring QoL in patients with HNL. This study describes initial development of the CALI-HaN, an instrument that shows promise for clinical and research applications following future validation.

Item Type:	Article
Uncontrolled Keywords:	head and neck lymphedema, lymphedema, lymphoedema, quality of life, quality of life measurement
Divisions:	Faculty of Health & Life Sciences Faculty of Health & Life Sciences > Inst. Population Health
Depositing User:	Symplectic Admin
Date Deposited:	14 Feb 2024 09:41
Last Modified:	23 May 2026 08:26
DOI:	10.1002/hed.27704
Related Websites:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3178637
Disclaimer:	The University of Liverpool is not responsible for content contained on other websites from links within repository metadata. Please contact us if you notice anything that appears incorrect or inappropriate.