Clinical registries: governance, management, analysis and applications.



Hickey, Graeme L ORCID: 0000-0002-4989-0054, Grant, Stuart W ORCID: 0000-0003-3468-591X, Cosgriff, Rebecca, Dimarakis, Ioannis ORCID: 0000-0002-3795-3644, Pagano, Domenico, Kappetein, Arie P and Bridgewater, Ben
(2013) Clinical registries: governance, management, analysis and applications. European journal of cardio-thoracic surgery : official journal of the European Association for Cardio-thoracic Surgery, 44 (4). pp. 605-614.

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Abstract

Clinical registries will have an increasingly important role to play in health-care, with a number already established in cardiac surgery. This review covers the fundamentals of establishing and managing clinical registries, including legal and ethical frameworks along with intellectual property attribution. Also discussed are important issues relating to the processing of data, data extraction and conducting analyses using registry data.

Item Type: Article
Uncontrolled Keywords: Humans, Registries, Biomedical Research, Intellectual Property, Ethics, Professional, Management Information Systems
Depositing User: Symplectic Admin
Date Deposited: 19 May 2015 14:09
Last Modified: 16 Mar 2024 15:30
DOI: 10.1093/ejcts/ezt018
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/2011519