Use of routine data and data registries globally in exploring dementia care pathways and inequalities: a systematic review



Watson, James ORCID: 0000-0002-0238-1906, Giebel, Clarissa ORCID: 0000-0002-0746-0566, Green, Mark ORCID: 0000-0002-0942-6628, Darlington-Pollock, Fran ORCID: 0000-0001-5544-4459 and Akpan, Asangaedem ORCID: 0000-0002-1764-8669
(2021) Use of routine data and data registries globally in exploring dementia care pathways and inequalities: a systematic review. International Journal of Geriatric Psychiatry, 36 (2). pp. 252-270.

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Abstract

<jats:title>Abstract</jats:title><jats:sec><jats:title>Objectives</jats:title><jats:p>The aim of this systematic review was to evaluate studies which employed routine and cohort data sets to understand inequalities in dementia care pathways.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>We identified 27 research papers using routine data sets to investigate inequalities in dementia care pathways through electronic and grey literature searches. Papers were independently assessed by two reviewers for inclusion based on defined criteria. Included papers were quality rated using the National Institutes of Health Quality Assessment Tool for Observational Cohort and Cross‐Sectional Studies. Data was extracted based on stage(s) in dementia care pathway and socio‐economic factors investigated.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Inequalities were noted across dementia care pathways. Socio‐economic and protected characteristics were shown to impact the likelihood of people with dementia moving into institutional nursing care, the quality and consistency of their treatment, need for emergency and urgent healthcare, the rate of illness progression and their long‐term survival. Research was often disparate ignoring the multiple parts of the dementia care pathway, or the impact of specific factors across multiple stages.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>Our study highlights issues in dementia care pathways based on socio‐economic or protected characteristics. Equitable service provision, more culturally appropriate services, improved health literacy and increased provision for both early diagnosis and care at home can help narrow the gap in dementia care inequalities. There is greater need for research investigating dementia care pathways as something greater than the sum of its parts; exploring the influence of socio‐economic factors from a person's entrance into the system and throughout.</jats:p></jats:sec>

Item Type: Article
Uncontrolled Keywords: care, cohort, dementia, inequalities, pathway, registry, routine data, socio-economic
Depositing User: Symplectic Admin
Date Deposited: 28 Sep 2020 09:50
Last Modified: 04 Sep 2023 19:04
DOI: 10.1002/gps.5419
Open Access URL: https://doi.org/10.1002/gps.5419
Related URLs:
URI: https://livrepository.liverpool.ac.uk/id/eprint/3102838