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Williamson, Paula R ORCID: 0000-0001-9802-6636, de Ávila Oliveira, Ricardo, Clarke, Mike, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Hughes, Karen, Kirkham, Jamie J ORCID: 0000-0003-2579-9325, Li, Tianjing, Saldanha, Ian J and Schmitt, Jochen (2020) Assessing the relevance and uptake of core outcome sets (an agreed minimum collection of outcomes to measure in research studies) in Cochrane systematic reviews: a review. BMJ open, 10 (9). e036562-.

Gorst, Sarah L ORCID: 0000-0002-7818-9646, Gargon, Elizabeth, Clarke, Mike, Smith, Valerie and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2016) Choosing Important Health Outcomes for Comparative Effectiveness Research: An Updated Review and Identification of Gaps. PLOS ONE, 11 (12). e0168403-.

Gargon, Elizabeth, Gorst, Sarah L ORCID: 0000-0002-7818-9646 and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2019) Choosing important health outcomes for comparative effectiveness research: 5th annual update to a systematic review of core outcome sets for research. PLOS ONE, 14 (12). e0209869-.

Gargon, Elizabeth ORCID: 0000-0002-3848-0113, Gorst, Sarah L ORCID: 0000-0002-7818-9646 and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2019) Choosing important health outcomes for comparative effectiveness research: 5th annual update to a systematic review of core outcome sets for research. PloS one, 14 (12). e0225980-.

Gargon, Elizabeth, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Matvienko-Sikar, Karen and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2021) Choosing important health outcomes for comparative effectiveness research: 6<SUP>th</SUP> annual update to a systematic review of core outcome sets for research. PLOS ONE, 16 (1). e0244878-.

Davis, Katherine, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Harman, Nicola ORCID: 0000-0001-6958-6466, Smith, Valerie, Gargon, Elizabeth, Altman, Douglas G, Blazeby, Jane M, Clarke, Mike, Tunis, Sean and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2018) Choosing important health outcomes for comparative effectiveness research: An updated systematic review and involvement of low and middle income countries. PLOS ONE, 13 (2). e0190695-.

Saldanha, Ian J, Dodd, Susanna, Fish, Rebecca, Gorst, Sarah L, Hall, Deborah A, Jacobsen, Pamela, Kirkham, Jamie J ORCID: 0000-0003-2579-9325, Trepel, Dominic and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2022) Comparison of published core outcome sets with outcomes recommended in regulatory guidance from the US Food and Drug Administration and European Medicines Agency: cross sectional analysis. BMJ medicine, 1 (1). e000233-e000233.

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Gorst, Sarah L ORCID: 0000-0002-7818-9646, Seylanova, Nina, Dodd, Susanna R ORCID: 0000-0003-2851-3337, Harman, Nicola L ORCID: 0000-0001-6958-6466, O'Hara, Margaret, Terwee, Caroline B, Williamson, Paula R ORCID: 0000-0001-9802-6636, Needham, Dale M, Munblit, Daniel, Nicholson, Timothy R et al (show 1 more authors) and PC-COS study group, (2023) Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study. The Lancet. Respiratory medicine, 11 (12). S2213-2600(23)00370-3-S2213-2600(23)00370-3.

Sherratt, Frances C ORCID: 0000-0003-4147-9305, Bagley, Heather, Stones, Simon R, Preston, Jenny ORCID: 0000-0003-4800-234X, Hall, Nigel J, Gorst, Sarah L ORCID: 0000-0002-7818-9646 and Young, Bridget ORCID: 0000-0001-6041-9901 (2020) Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people. Research involvement and engagement, 6 (1). 19-.

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Harman, Nicola L ORCID: 0000-0001-6958-6466, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Williamson, Paula R ORCID: 0000-0001-9802-6636, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E et al (show 6 more authors) , Walton, Marc K, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C and Culver, Daniel A (2022) IDENTIFYING A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS RESEARCH - THE FOUNDATION FOR SARCOIDOSIS RESEARCH - SARCOIDOSIS CLINICAL OUTCOMES TASKFORCE (SCOUT). SARCOIDOSIS VASCULITIS AND DIFFUSE LUNG DISEASES, 39 (3). e2022030-.

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Harman, Nicola L ORCID: 0000-0001-6958-6466, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Williamson, Paula R ORCID: 0000-0001-9802-6636, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E et al (show 6 more authors) , Walton, Marc K, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C and Culver, Daniel A (2022) Identifying a core outcome set for pulmonary sarcoidosis research - the Foundation for Sarcoidosis Research - Sarcoidosis Clinical OUtcomes Taskforce (SCOUT). Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG, 39 (3). e2022030.

Karumbi, Jamlick, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Gathara, David, Gargon, Elizabeth, Young, Bridget ORCID: 0000-0001-6041-9901 and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2021) Inclusion of participants from low-income and middle-income countries in core outcome sets development: a systematic review. BMJ OPEN, 11 (10). e049981-.

Gorst, Sarah L ORCID: 0000-0002-7818-9646, Young, Bridget ORCID: 0000-0001-6041-9901, Williamson, Paula R ORCID: 0000-0001-9802-6636, Wilding, John PH ORCID: 0000-0003-2839-8404 and Harman, Nicola ORCID: 0000-0001-6958-6466 (2019) Incorporating Patients' Perspectives into the Initial Stages of Core Outcome Set Development: A Rapid Review of Qualitative Studies of Type 2 Diabetes. BMJ Open Diabetes Research and Care, 7 (1). e000615-.

Gorst, Sarah L, Young, Bridget ORCID: 0000-0001-6041-9901, Williamson, Paula R, Wilding, John PH ORCID: 0000-0003-2839-8404 and Harman, Nicola ORCID: 0000-0001-6958-6466 (2019) Incorporating Patients' Perspectives into the Initial Stages of Core Outcome Set Development: A Rapid Review of Qualitative Studies of Type 2 Diabetes. SSRN Electronic Journal.

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Smith, Eve MD, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Al-Abadi, Eslam, Hawley, Daniel P, Leone, Valentina, Pilkington, Clarissa, Ramanan, Athimalaipet V, Rangaraj, Satyapal, Sridhar, Arani, Beresford, Michael W ORCID: 0000-0002-5400-9911 et al (show 1 more authors) and Young, Bridget ORCID: 0000-0001-6041-9901 (2021) “It is good to have a target in mind”: Qualitative views of patients and parents informing a treat to target clinical trial in JSLE. Rheumatology, 60 (12). pp. 5630-5641.

Gorst, Sarah L ORCID: 0000-0002-7818-9646, Prinsen, Cecilia AC, Salcher-Konrad, Maximilian, Matvienko-Sikar, Karen, Williamson, Paula R ORCID: 0000-0001-9802-6636 and Terwee, Caroline B (2020) Methods used in the selection of instruments for outcomes included in core outcome sets have improved since the publication of the COSMIN/ COMET guideline. JOURNAL OF CLINICAL EPIDEMIOLOGY, 125. pp. 64-75.

Saldanha, Ian J, Dodd, Susanna ORCID: 0000-0003-2851-3337, Gorst, Sarah L ORCID: 0000-0002-7818-9646 and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2021) More than half of systematic reviews have relevant core outcome sets. JOURNAL OF CLINICAL EPIDEMIOLOGY, 136. pp. 168-179.

Dodd, Susanna ORCID: 0000-0003-2851-3337, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Young, Amber, Lucas, Samuel W and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2023) Patient participation impacts outcome domain selection in core outcome sets for research: an updated systematic review. Journal of Clinical Epidemiology, 158. pp. 127-133.

Ciani, Oriana, Salcher-Konrad, Maximilian, Meregaglia, Michela, Smith, Kathrine, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Dodd, Susanna ORCID: 0000-0003-2851-3337, Williamson, Paula R ORCID: 0000-0001-9802-6636 and Fattore, Giovanni (2021) Patient-reported outcome measures in core outcome sets targeted overlapping domains but through different instruments. JOURNAL OF CLINICAL EPIDEMIOLOGY, 136. pp. 26-36.

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Harman, Nicola L ORCID: 0000-0001-6958-6466, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Williamson, Paula R ORCID: 0000-0001-9802-6636, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junks, Heidi, Kampstre, Nynke A, Sullivan, Eugene J, Victorson, David E et al (show 6 more authors) , Walton, Marc, AL-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C and Culver, Daniel A (2021) SCOUT - SARCOIDOSIS OUTCOMES TASKFORCE. A SYSTEMATIC REVIEW OF OUTCOMES TO INFORM THE DEVELOPMENT OF A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS. SARCOIDOSIS VASCULITIS AND DIFFUSE LUNG DISEASES, 38 (3). e2021034-.

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Munblit, Daniel, Nicholson, Timothy R, Needham, Dale M, Seylanova, Nina, Parr, Callum, Chen, Jessica, Kokorina, Alisa, Sigfrid, Louise, Buonsenso, Danilo, Bhatnagar, Shinjini et al (show 29 more authors) , Thiruvengadam, Ramachandran, Parker, Ann M, Preller, Jacobus, Avdeev, Sergey, Klok, Frederikus A, Tong, Allison, Diaz, Janet V, De Groote, Wouter, Schiess, Nicoline, Akrami, Athena, Simpson, Frances, Olliaro, Piero, Apfelbacher, Christian, Rosa, Regis Goulart, Chevinsky, Jennifer R, Saydah, Sharon, Schmitt, Jochen, Guekht, Alla, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Genuneit, Jon, Reyes, Luis Felipe, Asmanov, Alan, O'Hara, Margaret E, Scott, Janet T, Michelen, Melina, Stavropoulou, Charitini, Warner, John O, Herridge, Margaret and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2022) Studying the post-COVID-19 condition: research challenges, strategies, and importance of Core Outcome Set development. BMC MEDICINE, 20 (1). 50-.

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Matvienko-Sikar, Karen, Avery, Kerry, Blazeby, Jane M, Devane, Declan, Dodd, Susanna, Egan, Aoife M, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Hughes, Karen, Jacobsen, Pamela, Kirkham, Jamie J ORCID: 0000-0003-2579-9325 et al (show 10 more authors) , Kottner, Jan, Mellor, Katie, Millward, Christopher P ORCID: 0000-0001-7727-1157, Patel, Smitaa, Quirke, Fiona, Saldanha, Ian J, Smith, Valerie, Terwee, Caroline B, Young, Amber E and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2022) Use of core outcome sets was low in clinical trials published in major medical. JOURNAL OF CLINICAL EPIDEMIOLOGY, 142. pp. 19-28.

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Matvienko-Sikar, Karen, Avery, Kerry, Blazeby, Jane M, Devane, Declan, Dodd, Susanna ORCID: 0000-0003-2851-3337, Egan, Aoife M, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Hughes, Karen, Jacobsen, Pamela, Kirkham, Jamie J ORCID: 0000-0003-2579-9325 et al (show 10 more authors) , Kottner, Jan, Mellor, Katie, Millward, Christopher P ORCID: 0000-0001-7727-1157, Patel, Smitaa, Quirke, Fiona, Saldanha, Ian J, Smith, Valerie, Terwee, Caroline B, Young, Amber E and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2022) Use of core outcome sets was low in clinical trials published in major medical journals. Journal of Clinical Epidemiology, 142. pp. 19-28.

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Munblit, Daniel, Nicholson, Timothy, Akrami, Athena, Apfelbacher, Christian, Chen, Jessica, De Groote, Wouter, Diaz, Janet V, Gorst, Sarah L ORCID: 0000-0002-7818-9646, Harman, Nicola ORCID: 0000-0001-6958-6466, Kokorina, Alisa et al (show 10 more authors) , Olliaro, Piero, Parr, Callum, Preller, Jacobus, Schiess, Nicoline, Schmitt, Jochen, Seylanova, Nina, Simpson, Frances, Tong, Allison, Needham, Dale M and Williamson, Paula R ORCID: 0000-0001-9802-6636 (2022) A core outcome set for post-COVID-19 condition in adults for use in clinical practice and research: an international Delphi consensus study. LANCET RESPIRATORY MEDICINE, 10 (7). pp. 715-724.