Head and neck lymphedema and quality of life: the patient perspective.

Starmer, Heather M, Cherry, Mary Gemma, Patterson, Joanne ORCID: 0000-0001-8898-8292, Fleming, Jason ORCID: 0000-0001-7963-1224 and Young, Bridget ORCID: 0000-0001-6041-9901 (2023) Head and neck lymphedema and quality of life: the patient perspective. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 31 (12). p. 696.

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Abstract

<h4>Purpose</h4>Head and neck lymphedema (HNL) is common after head and neck cancer (HNC). This study aimed to explore quality of life (QoL) in patients with HNL to guide the development of a patient-reported QoL measure.<h4>Methods</h4>We conducted semi-structured interviews with 22 HNC survivors with HNL. Interviews explored participants' experiences of living with HNL. Analysis of interview transcripts drew on qualitative content analysis to ensure themes were grounded in patient experience.<h4>Results</h4>Two main themes were established: "I want to live my life" and "It was like things were short-circuited." These themes encompassed the substantial disruption patients attributed to the HNL and their desire to normalize life.<h4>Conclusions</h4>Understanding the impact of HNL on individual patients may be critical to optimizing treatment strategies to improve the physical burden of HNL and QoL. This study provides the framework for developing a patient-reported HNL QoL measure.<h4>Implications for cancer survivors</h4>The development of an HNL-specific QoL measure, grounded in the patient perspective, may provide cancer care teams with a tool to better understand HNL's impact on each patient to tailor patient-centered care and optimize QoL outcomes.

Item Type:	Article
Uncontrolled Keywords:	Neck, Humans, Lymphedema, Quality of Life, Patients, Patient-Centered Care
Divisions:	Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health Faculty of Health and Life Sciences > Institute of Population Health > School of Health Sciences Faculty of Health and Life Sciences > Institute of Systems, Molecular and Integrative Biology
Depositing User:	Symplectic Admin
Date Deposited:	23 Nov 2023 10:33
Last Modified:	30 Nov 2023 18:17
DOI:	10.1007/s00520-023-08150-2
Related URLs:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3176987