Wilson, Neil, Whittaker, Karen, Arnott, Janine, Burke, Lauren, Beresford, Michael W 
ORCID: 0000-0002-5400-9911 and Peak, Matthew
(2023)
Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis.
JOURNAL OF CHILD HEALTH CARE, 27 (3).
pp. 435-449.
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Abstract
Transition services for young people with long-term conditions often fall short. This qualitative study explored perspectives on service features that enable effective transition in epilepsy and juvenile idiopathic arthritis. Patients, parents, clinicians and service commissioners took part in semi-structured interviews (<i>n</i> = 18). Thematic analysis was used to identify key features, barriers and facilitators of effective transition across participant groups. Analysis led to the development of nine sub-themes which mapped to overarching domains of communication, capability, continuity and capacity. Findings include the need for age appropriate communication, the link between parental dependence, self-care and patient knowledge, the value of service integration for continuity and the impact of capacity on flexible and age appropriate transition services.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | Adolescent, arthritis juvenile, epilepsy, chronic disease, transition to adult care |
| Divisions: | Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Life Courses and Medical Sciences |
| Depositing User: | Symplectic Admin |
| Date Deposited: | 06 Oct 2023 13:18 |
| Last Modified: | 06 Oct 2023 13:19 |
| DOI: | 10.1177/13674935221074777 |
| Open Access URL: | https://doi.org/10.1177/1367493522107477 |
| Related URLs: | |
| URI: | https://livrepository.liverpool.ac.uk/id/eprint/3173497 |
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