Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN)

Starmer, Heather ORCID: 0000-0002-1716-9852, Patterson, Joanne ORCID: 0000-0001-8898-8292, Young, Bridget ORCID: 0000-0001-6041-9901, Fleming, Jason ORCID: 0000-0001-7963-1224 and Cherry, Mary (2024) Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN). Head and Neck: journal for the sciences and specialities of the head and neck, 46 (5). pp. 1103-1111.

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Official URL: http://dx.doi.org/10.1002/hed.27704

Abstract

<h4>Purpose</h4>To develop a head and neck lymphoedema (HNL) specific quality of life (QoL) instrument to assess physical, functional, and social/emotional impacts of HNL.<h4>Methods</h4>Instrument candidate items were reviewed by patients with HNL and clinicians and rated for importance, clarity, and invasiveness. The Content Validity Ratio was applied for item reduction. Three-step cognitive interviews were conducted with HNL patients to validate the items, survey format, and instructions.<h4>Results</h4>Initially, 130 candidate questions were developed. Following item reduction, 52 items progressed to three-step cognitive interviews. Following cognitive interviews, the Comprehensive Assessment of Lymphoedema Impact in Head and Neck (CALI-HaN) included 33 items; 1 global, 10 physical, 7 functional, and 15 emotional.<h4>Conclusions</h4>Physical, functional, and socioemotional effects need to be considered when measuring QoL in patients with HNL. This study describes initial development of the CALI-HaN, an instrument that shows promise for clinical and research applications following future validation.

Item Type:	Article
Uncontrolled Keywords:	Humans, Head and Neck Neoplasms, Lymphedema, Quality of Life, Surveys and Questionnaires
Divisions:	Faculty of Health and Life Sciences Faculty of Health and Life Sciences > Institute of Population Health
Depositing User:	Symplectic Admin
Date Deposited:	14 Feb 2024 09:41
Last Modified:	18 Apr 2024 22:36
DOI:	10.1002/hed.27704
Related URLs:	Author Publisher
URI:	https://livrepository.liverpool.ac.uk/id/eprint/3178637